We are training for an endurance or distance event and have chosen, to raise money for essential research of effective treatments and to find a cure for Rett syndrome.
Rett syndrome is a genetic neurological disorder occurring almost exclusively in females and becoming apparent after 6-18 months of early normal development. The resulting regression leads to lifelong impairments, including lost speech, seizures, scoliosis, irregular breathing patterns, and more than half of the children and women lose the ability to walk. Those diagnosed with Rett syndrome require maximum assistance with basic daily activities.
Your donation will help fund important research and family support. This cause is very important to us and we appreciate your help as we fight for a cure for Rett syndrome!
Please join us or donate to our efforts to support IRSF in finding a cure!