About Our Organization

Rettsyndrome.org, a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation, is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, empowering families, and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders.  Rettsyndrome.org has funded over $35M in high-quality, peer-reviewed research grants and programs to date making it the world’s leading private funder of basic, translational, neuro-habilitation and clinical Rett syndrome research.  Rettsyndrome.org hosts the largest global gathering of Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. To learn more, visit  www.rettsyndrome.org or call 1-800-818-7388 (RETT).

Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation

© International Rett Syndrome Foundation | Privacy policy | Email preferences