Families and Friends in the Rett syndrome community are dedicated and enthusiastic fundraisers for Rettsyndrome.org. Volunteers from around the country have contacted us to learn how to fundraise as part of a distance or endurance event for which they have already signed up and to find out how they can connect with other volunteers who may be participating in the same event. This could be a 5k, half marathon, obstacle course race, triathlon or more!

You have asked and this is our answer! Check out the Featured Races list in the middle of the page for ideas of what races to join. Join those races as normal through their registration pages. You will then create and customize a personal fundraising page where you can upload photos, tell your story, send emails to friends and family, and connect to Facebook through our Rett Racers site. If you have a current login for Rettsyndrome.org please use that same information ( ie: personal pages, Strollathon). If you do not remember this information, please contact Jackie Ventura at jventura@rettsyndrome.org.

Questions and feedback can be shared with Jackie Ventura, Family Development Manager at jventura@rettsyndrome.org or 978-500-2495.